Senior Research Fellow
Affiliation: ISOQOL, ISPOR
I am a senior research fellow focusing on health services research at the Menzies Institute for Medical Research, University of Tasmania. As part of this role I am also Director of the Tasmanian Cancer Registry.
Q&A with Jessica
What interested you about patient reported measures research and/or projects?
I became interested in patient-reported measures research and projects because it was meaningful and fun at the same time. I am primarily a methodological researcher, and with PROM research I feel that my methodological work can translate into things that matter to patients and carers. There are many methodological challenges to explore and address in PROM research as well.
What is your biggest achievement in relation to patient reported measures research, or the application of research into practice?
One of my major areas of research has been on handling data from carers when patients can’t complete patient-reported measures. In 2020, I published a paper about the limitations of advanced methods for addressing this challenge (Roydhouse, Gutman, Keating, Mor & Wilson, Propensity scores for proxy reports of care experience and quality: Are they useful? (2020), Health Services and Outcomes Research Methodology 20:40 – 59). My colleagues and I recently received funding to try and address this problem. I feel this is one of my biggest achievements as I helped identify the problem and now I can work towards addressing it.
How do you approach collaboration with consumers, carers and community? Or how do think we can work together to keep making advancements in this space?
I think collaboration with consumers and/or carers is an important aspect of research, particularly PROM research as the goal of using PROMs is to include patient voices in care and research. This is possible even for methodological research. We have consumer and carer representatives as advisors on the project I mentioned above. I think researchers should consider how we can learn from our consumer or carer partners and how we can work with and engage them. I feel that consumer/carer engagement has benefited my projects and helped me think about issues I may not have previously considered.
View other profiles in the PRMs Collaborative Conversation Series.