Second PRMs Research Collaborative Symposium

Pre­sent­ed in part­ner­ship with:

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The Com­mis­sion on Excel­lence and Inno­va­tion in Health (CEIH) and Health Trans­la­tion SA host­ed the sec­ond Patient Report­ed Mea­sures (PRMs) Research Col­lab­o­ra­tive Sym­po­sium at SAHM­RI on 14 Novem­ber 2022. The Sym­po­sium focused on the theme:

Using patient-report­ed mea­sures to improve health care for cul­tur­al­ly and lin­guis­ti­cal­ly diverse (CALD) pop­u­la­tions, peo­ple liv­ing with dis­abil­i­ty and First Nations peoples.

Keynote speak­er Moham­mad Al-Khafa­ji, CEO of the Fed­er­a­tion of Eth­nic Com­mu­ni­ties’ Coun­cils of Aus­tralia (FEC­CA), set the tone for the day with his state­ment ​“diver­si­ty is a fact; inclu­sion is a choice!”

Mohammed pro­vid­ed valu­able insights into chal­lenges faced by CALD com­mu­ni­ties when inter­act­ing with the health­care and research sec­tors, ahead of pre­sen­ta­tions from a fan­tas­tic range of health pro­fes­sion­als with exper­tise in engag­ing with under­rep­re­sent­ed pop­u­la­tions (read about all the speak­ers in the day’s pro­gram and see videos of all pre­sen­ta­tions in the sec­tion below).

Pre­sen­ters high­light­ed the impor­tance of adapt­ing com­mu­ni­ca­tion to improve indi­vid­u­als’ access, par­tic­i­pa­tion and inclu­sion in their own health care. They described how patient-report­ed mea­sures are being used dri­ve under­stand­ing of spe­cif­ic pop­u­la­tions’ needs and inno­va­tions in ser­vice pro­vi­sion and research.

Our PRM Research Col­lab­o­ra­tive Grant win­ners, Haema­tol­ogy Nurse Prac­ti­tion­er Nicole Loft and lived expe­ri­ence patient safe­ty advo­cate Andrew Knox, pre­sent­ed the aims of their study which is cen­tred on bet­ter under­stand­ing the unex­pressed needs of can­cer patients by engag­ing with peo­ple who have been through stem cell transplants.

A pan­el ses­sion and inter­ac­tive work­shop in the after­noon pro­vid­ed more oppor­tu­ni­ty to share lived expe­ri­ences, tips and rec­om­men­da­tions for work­ing with groups with unique needs and cir­cum­stances. Feed­back includ­ed the impor­tance of always con­sid­er­ing the indi­vid­ual, allow­ing appro­pri­ate time for engage­ment, and includ­ing con­sumers in every con­ver­sa­tion. Easy read infor­ma­tion was a promi­nent theme of dis­cus­sion, enabling bet­ter co-design in research and sup­port­ing inclu­sion and accessibility.