PRMs Research Collaborative launches with Research Symposium

PRMs Research Collaborative launches with Research Symposium image Published 30 March 2022

In part­ner­ship with Health Trans­la­tion SA, the CEIH has estab­lished a Patient Report­ed Mea­sures Research Col­lab­o­ra­tive of over 110 mem­bers. The Col­lab­o­ra­tive is build­ing a pro­fes­sion­al net­work of peo­ple with exper­tise and inter­est in PRMs research and pro­mot­ing oppor­tu­ni­ties that will fos­ter part­ner­ship and col­lab­o­ra­tion in our health system.

The Col­lab­o­ra­tive offi­cial­ly launched on 18 March 2022 at the inau­gur­al PRMs Research Sym­po­sium, host­ed both in-per­son at SAHM­RI (South Aus­tralian Health & Med­ical Research Insti­tute) and broad­cast to vir­tu­al audi­ence. The Sym­po­sium show­cased the work of our fan­tas­tic researchers here in SA, shar­ing their knowl­edge and exper­tise in patient report­ed measures.

We heard from:

  • Pro­fes­sor Julie Rat­cliffe, on mea­sur­ing qual­i­ty of life and care expe­ri­ence with old­er Australians
  • Pro­fes­sor Bog­da Koczwara, on the work at Flinders Med­ical Cen­tre to eval­u­ate and imple­ment a web-based sys­tem of screen­ing symp­toms for peo­ple with cancer
  • Madeleine Bryant, on behalf of the team from Cen­tral Ade­laide Local Health Net­work devel­op­ing a PREMs for use in out­pa­tient rheuma­tol­ogy care
  • Dr Nadia Corsi­ni and Dr Imo­gen Ram­sey, on efforts to iden­ti­fy and select PROMs for can­cer survivorship
  • Asso­ciate Pro­fes­sor Han­nah Wechku­nanukul, on lessons learnt from cul­tur­al­ly and lin­guis­ti­cal­ly diverse pop­u­la­tions and the imple­men­ta­tion of dig­i­tal health to reduce health inequities
  • Dr Micha­la Short, on a col­lab­o­ra­tive project between the Uni­ver­si­ty of South Aus­tralia, Women’s and Children’s Hos­pi­tal and the Roy­al Ade­laide Hos­pi­tal to design an online plat­form to assess qual­i­ty of life in chil­dren after radi­a­tion ther­a­py for cancer
  • Pro­fes­sor Rachael Mor­ton, on mea­sur­ing health-relat­ed qual­i­ty of life for peo­ple on dial­y­sis through the ANZ­DA­TA Reg­istry – Symp­tom mon­i­tor­ing WIth Feed­back Tri­al (SWIFT) expe­ri­ence of large-scale PROMs col­lec­tion and use

Pre­sen­ters pro­vid­ed insight­ful rec­om­men­da­tions to sup­port the con­tin­ued efforts to imple­ment and embed patient report­ed mea­sures across health­care in South Aus­tralia. High­light­ing the vast depth of knowl­edge with­in our research and clin­i­cal com­mu­ni­ty, both local­ly and nation­al­ly, that can be har­nessed to strength­en the applied trans­la­tion of patient report­ed mea­sures into clin­i­cal prac­tice. From shar­ing knowl­edge on tools avail­able to mea­sure the fac­tors that mat­ter most to patients, through to how to embed this infor­ma­tion into rou­tine prac­tice, and most impor­tant­ly how clin­i­cians can respond to infor­ma­tion col­lect­ed to ensure improve­ments in the health and qual­i­ty of life for con­sumers. Echoed by a take home mes­sage from Pro­fes­sor Bog­da Koczwara that Data alone achieves noth­ing unless you actu­al­ly go and do some­thing about it”.

To reach more and join the Research Col­lab­o­ra­tive, see Reg­is­ter to join the PRMs Research Col­lab­o­ra­tive.