In partnership with Health Translation SA, the CEIH has established a Patient Reported Measures Research Collaborative of over 110 members. The Collaborative is building a professional network of people with expertise and interest in PRMs research and promoting opportunities that will foster partnership and collaboration in our health system.
The Collaborative officially launched on 18 March 2022 at the inaugural PRMs Research Symposium, hosted both in-person at SAHMRI (South Australian Health & Medical Research Institute) and broadcast to virtual audience. The Symposium showcased the work of our fantastic researchers here in SA, sharing their knowledge and expertise in patient reported measures.
We heard from:
- Professor Julie Ratcliffe, on measuring quality of life and care experience with older Australians
- Professor Bogda Koczwara, on the work at Flinders Medical Centre to evaluate and implement a web-based system of screening symptoms for people with cancer
- Madeleine Bryant, on behalf of the team from Central Adelaide Local Health Network developing a PREMs for use in outpatient rheumatology care
- Dr Nadia Corsini and Dr Imogen Ramsey, on efforts to identify and select PROMs for cancer survivorship
- Associate Professor Hannah Wechkunanukul, on lessons learnt from culturally and linguistically diverse populations and the implementation of digital health to reduce health inequities
- Dr Michala Short, on a collaborative project between the University of South Australia, Women’s and Children’s Hospital and the Royal Adelaide Hospital to design an online platform to assess quality of life in children after radiation therapy for cancer
- Professor Rachael Morton, on measuring health-related quality of life for people on dialysis through the ANZDATA Registry – Symptom monitoring WIth Feedback Trial (SWIFT) experience of large-scale PROMs collection and use
Presenters provided insightful recommendations to support the continued efforts to implement and embed patient reported measures across healthcare in South Australia. Highlighting the vast depth of knowledge within our research and clinical community, both locally and nationally, that can be harnessed to strengthen the applied translation of patient reported measures into clinical practice. From sharing knowledge on tools available to measure the factors that matter most to patients, through to how to embed this information into routine practice, and most importantly how clinicians can respond to information collected to ensure improvements in the health and quality of life for consumers. Echoed by a take home message from Professor Bogda Koczwara that “Data alone achieves nothing unless you actually go and do something about it”.
To reach more and join the Research Collaborative, see Register to join the PRMs Research Collaborative.