Published 27 June 2022
In March 2022, the CEIH announced a PRMs Research Collaborative Grant. The CEIH is pleased to announce the grant winners, and their research project: “Minimising the burden of haematopoietic stem cell transplant through PRMs”.
The research funding opportunity was for a project to support and promote consumer-led research in patient reported measures. The CEIH PRMs Research Collaborative Grant has been awarded to a research project titled “Minimising the burden of haematopoietic stem cell transplant through PRMs”. The project demonstrates a genuine collaboration between consumers, researchers, and health-care organisations.
The dynamic research team, co-led by Andrew Knox, Graham Lewis, Dr Hannah Wardill and Nicole Loft, with collaboration of clinical knowledge and expertise from the Central Adelaide Local Health Network Haematology Department, consumer representation, and researchers from multiple SA academic institutions, this project is set to provide meaningful insights for supportive care and cancer treatment.
The project aims to delve more deeply and understand the unexpressed needs of cancer survivorship through the research collection, to find out “what we don’t know, and what we can do”, to identify and then better support the care needs of people post-stem cell transplant through implementation of a patient reported outcome measure (PROM).
Applying a consumer lens, the team seeks to provide more holistic care, that is less fragmented, and opportunity for earlier intervention of new symptoms post-transplant. In doing so, providing a mechanism through the collection of PROMs to be more proactive, measure patients perspectives and work together in partnership, as patients navigate the complex and highly individualised symptoms and side-effects, post-cancer treatment.
Applying lived experience and consumer co-design throughout the research project, a goal is to first reach consensus on “what” should be measured (i.e. core outcomes) and then “how” to best measure the patient outcomes. Working towards a vision of having PROMs routinely implemented in survivorship cancer care pathways and provide the evidence needed to truly implement a patient-centric care service.
The CEIH, Health Translation SA and PRMs Program team can’t wait to see the outcomes from this valuable project. With further opportunity to promote and to share insights across the consumer and PRMs community, watch this space to keep informed about the PRMs Research Collaborative.
To learn more about the Collaborative, see Patient Reported Measures Research Collaborative.