Patient Reported Measures Research Collaborative grant winner announced

Patient Reported Measures Research Collaborative grant winner announced image Published 27 June 2022

In March 2022, the CEIH announced a PRMs Research Col­lab­o­ra­tive Grant. The CEIH is pleased to announce the grant win­ners, and their research project: Min­imis­ing the bur­den of haematopoi­et­ic stem cell trans­plant through PRMs”.

The research fund­ing oppor­tu­ni­ty was for a project to sup­port and pro­mote con­sumer-led research in patient report­ed mea­sures. The CEIH PRMs Research Col­lab­o­ra­tive Grant has been award­ed to a research project titled Min­imis­ing the bur­den of haematopoi­et­ic stem cell trans­plant through PRMs”. The project demon­strates a gen­uine col­lab­o­ra­tion between con­sumers, researchers, and health-care organisations. 

The dynam­ic research team, co-led by Andrew Knox, Gra­ham Lewis, Dr Han­nah Wardill and Nicole Loft, with col­lab­o­ra­tion of clin­i­cal knowl­edge and exper­tise from the Cen­tral Ade­laide Local Health Net­work Haema­tol­ogy Depart­ment, con­sumer rep­re­sen­ta­tion, and researchers from mul­ti­ple SA aca­d­e­m­ic insti­tu­tions, this project is set to pro­vide mean­ing­ful insights for sup­port­ive care and can­cer treatment. 

The project aims to delve more deeply and under­stand the unex­pressed needs of can­cer sur­vivor­ship through the research col­lec­tion, to find out what we don’t know, and what we can do”, to iden­ti­fy and then bet­ter sup­port the care needs of peo­ple post-stem cell trans­plant through imple­men­ta­tion of a patient report­ed out­come mea­sure (PROM).

Apply­ing a con­sumer lens, the team seeks to pro­vide more holis­tic care, that is less frag­ment­ed, and oppor­tu­ni­ty for ear­li­er inter­ven­tion of new symp­toms post-trans­plant. In doing so, pro­vid­ing a mech­a­nism through the col­lec­tion of PROMs to be more proac­tive, mea­sure patients per­spec­tives and work togeth­er in part­ner­ship, as patients nav­i­gate the com­plex and high­ly indi­vid­u­alised symp­toms and side-effects, post-can­cer treatment. 

Apply­ing lived expe­ri­ence and con­sumer co-design through­out the research project, a goal is to first reach con­sen­sus on what” should be mea­sured (i.e. core out­comes) and then how” to best mea­sure the patient out­comes. Work­ing towards a vision of hav­ing PROMs rou­tine­ly imple­ment­ed in sur­vivor­ship can­cer care path­ways and pro­vide the evi­dence need­ed to tru­ly imple­ment a patient-cen­tric care service. 

The CEIH, Health Trans­la­tion SA and PRMs Pro­gram team can’t wait to see the out­comes from this valu­able project. With fur­ther oppor­tu­ni­ty to pro­mote and to share insights across the con­sumer and PRMs com­mu­ni­ty, watch this space to keep informed about the PRMs Research Collaborative. 

Image from left to right of Patient Report­ed Mea­sures Research Col­lab­o­ra­tive grant win­ners: Alia Cibich, Kirsty Sharplin, Andrew Knox, Gra­ham Lewis, Nicole Loft, Han­nah Wardill

To learn more about the Col­lab­o­ra­tive, see Patient Report­ed Mea­sures Research Col­lab­o­ra­tive.