The Commission on Excellence and Innovation in Health (CEIH) and Health Translation SA hosted the second Patient Reported Measures (PRMs) Research Collaborative Symposium at SAHMRI on 14 November 2022. The Symposium focused on the theme:
Using patient-reported measures to improve health care for culturally and linguistically diverse (CALD) populations, people living with disability and First Nations peoples.
Keynote speaker Mohammad Al-Khafaji, CEO of the Federation of Ethnic Communities’ Councils of Australia (FECCA), set the tone for the day with his statement “diversity is a fact; inclusion is a choice!”
Presenters highlighted the importance of adapting communication to improve individuals’ access, participation and inclusion in their own health care. They described how patient-reported measures are being used drive understanding of specific populations’ needs and innovations in service provision and research.
Our Research Collaborative Grant winners, Haematology Nurse Practitioner Nicole Loft and lived experience patient safety advocate Andrew Knox, presented the aims of their study which is centred on better understanding the unexpressed needs of cancer patients by engaging with people who have been through stem cell transplants.
A panel session and interactive workshop in the afternoon provided more opportunity to share lived experiences, tips and recommendations for working with groups with unique needs and circumstances.
Three strong themes emerged throughout the day.
“Make it easier to understand… better still, make it impossible to misunderstand!”
Inclusivity and engagement
“Diversity is a fact; inclusion is a choice!”
“Behind every piece of data is a human”