Second PRMs Research Collaborative Symposium

Second PRMs Research Collaborative Symposium image Published 13 January 2023

The Com­mis­sion on Excel­lence and Inno­va­tion in Health (CEIH) and Health Trans­la­tion SA host­ed the sec­ond Patient Report­ed Mea­sures (PRMs) Research Col­lab­o­ra­tive Sym­po­sium at SAHM­RI on 14 Novem­ber 2022. The Sym­po­sium focused on the theme:

Using patient-report­ed mea­sures to improve health care for cul­tur­al­ly and lin­guis­ti­cal­ly diverse (CALD) pop­u­la­tions, peo­ple liv­ing with dis­abil­i­ty and First Nations peoples.

Keynote speak­er Moham­mad Al-Khafa­ji, CEO of the Fed­er­a­tion of Eth­nic Com­mu­ni­ties’ Coun­cils of Aus­tralia (FEC­CA), set the tone for the day with his statement ​​“diver­si­ty is a fact; inclu­sion is a choice!”

Pre­sen­ters high­light­ed the impor­tance of adapt­ing com­mu­ni­ca­tion to improve indi­vid­u­als’ access, par­tic­i­pa­tion and inclu­sion in their own health care. They described how patient-report­ed mea­sures are being used dri­ve under­stand­ing of spe­cif­ic pop­u­la­tions’ needs and inno­va­tions in ser­vice pro­vi­sion and research.

Our Research Col­lab­o­ra­tive Grant win­ners, Haema­tol­ogy Nurse Prac­ti­tion­er Nicole Loft and lived expe­ri­ence patient safe­ty advo­cate Andrew Knox, pre­sent­ed the aims of their study which is cen­tred on bet­ter under­stand­ing the unex­pressed needs of can­cer patients by engag­ing with peo­ple who have been through stem cell transplants.

A pan­el ses­sion and inter­ac­tive work­shop in the after­noon pro­vid­ed more oppor­tu­ni­ty to share lived expe­ri­ences, tips and rec­om­men­da­tions for work­ing with groups with unique needs and circumstances.

Three strong themes emerged through­out the day.

Com­mu­ni­ca­tion

“Make it eas­i­er to under­stand… bet­ter still, make it impos­si­ble to misunderstand!”

Inclu­siv­i­ty and engagement

“Diver­si­ty is a fact; inclu­sion is a choice!”

Account­abil­i­ty

“Behind every piece of data is a human”

The CEIH and HTSA wish to thank every­one involved with this sym­po­sium — to join the Research Col­lab­o­ra­tive, please con­nect with us or go ahead and apply!